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    Pianist Nicolas Hodges Adapts to Life With Parkinson’s

    Nicolas Hodges has carried on with his career as an eminent interpreter of avant-garde music. But it hasn’t been without sacrifices.In the fall of 2018, the pianist Nicolas Hodges noticed his body shaking. He brought it up at a routine doctor’s appointment in Tübingen, Germany, where he lives. The doctor said it was probably stress, but recommended that he make an appointment with a neurologist.Hodges didn’t make that appointment right away. But then, in January 2019, the shaking caused him to play a wrong note during a performance.“It became instantly clear that I had to find out what was going on,” he said.Dr. Klaus Schreiber, a neurologist and a classical music lover, observed Hodges performing a few minor physical tasks — walking across a room, undressing and dressing — before he sent him for a series of tests that confirmed Hodges had Parkinson’s disease.Dr. Schreiber estimated that Hodges had been performing with Parkinson’s for three years.Hodges, 53, is a leading interpreter of contemporary classical music. As a soloist and chamber musician, he has premiered and recorded works by many important composers of this century, and the last. Recently, his symptoms have forced him to reduce and prioritize his performing commitments.The worst symptoms, which rarely occur, can leave him feeling, he said, as if he “just couldn’t play the piano.” But the diagnosis has also strengthened his dedication to his artistry and the contemporary repertoire.Physical limits have forced Hodges to make “aesthetic decisions,” he said, to select what music to commission and to perform with greater rigor. The diagnosis has “made me try to focus even more on what multiple contradictory things are most important to me.”Hodges has formidable technique and an ability to make the form of even highly complex pieces clearly audible. His tone color on the piano can shift from vinegary to supple in seconds. He is strikingly adaptable to the widely divergent visions of various contemporary composers. In John Adams’s “China Gates” (1977), Hodges has combined rhythmic propulsion with tiptoe delicacy. In Brian Ferneyhough’s opera “Shadowtime” (2004), he tackled a prismatically virtuosic solo while asking enigmatic questions out loud, like “What is the cube root of a counterfactual?” In Simon Steen-Andersen’s Piano Concerto (2014), he faced off against a video projection of himself at a smashed grand piano.Hodges, front, in Brian Ferneyhough’s “Shadowtime” at the Lincoln Center Festival in 2005.©Stephanie BergerIn 2020, Hodges recorded “A Bag of Bagatelles,” which wove together works by Beethoven and Harrison Birtwistle, a close collaborator. The juxtaposition illuminates the complexity, unpredictability and orchestral scale that animate the music of two composers centuries apart. Looking back, Hodges realized that he had recorded the album with untreated Parkinson’s disease.HODGES WAS BORN in London in 1970. His father was a studio manager at the BBC who later worked in computing, and his mother was a professional opera singer. Hodges began playing the piano at age 6 and composing at 9. Among his early pieces was the first scene of an opera based on the Perseus myth.Hodges attended elementary school at Christ Church Cathedral School in Oxford, where he took lessons on the viola, the oboe, the harpsichord and the organ, in addition to the piano. He sang in the Christ Church Cathedral Choir, performing works like Benjamin Britten’s “War Requiem” at the Royal Festival Hall under Simon Rattle.“We were woken up earlier than the rest of the school to practice,” Hodges said. The students who didn’t play music “got half an hour more sleep than I did the whole of my childhood.”For secondary school, Hodges went to Winchester College, in Hampshire, where Benjamin Morison, a pianist and composer who is now a professor of philosophy at Princeton University, introduced Hodges to contemporary music by playing an LP of music by Birtwistle and Gyorgy Kurtag. Hodges and Morison performed an arrangement of Stravinsky’s “The Rite of Spring” for two pianos and Pierre Boulez’s restless “Structures II” for their teachers and fellow students at Winchester, to bemused reactions.“I remember him being very precise — and encouraging me to be precise — and extremely musical,” Morison said of Hodges in a phone interview. “He was able to make the music speak as music.”In 1986, Hodges took a seminar with the composer Morton Feldman at the Dartington Summer School, where Feldman impressed upon him the seriousness of the experimental avant-garde. Hodges also played in a band that covered songs by the Sex Pistols and the Sisters of Mercy.Hodges has made a career as an avant-garde specialist, eventually working with the composers he idolized during his musical upbringing.Roderick Aichinger for The New York TimesIt was a heady and influential time. “I was improvising; I was listening to weird, dark, funky music, and playing Debussy,” Hodges said.For several years, he considered pursuing composition, to the dismay of his more traditionally minded mother. At age 23, he decided to refocus on the piano. “I just was having more fun as a pianist,” he said. “Composing is too much hard work.”As part of that decision, Hodges began studying with the pianist Sulamita Aronovsky, who had defected to Britain from the Soviet Union. A car crash shortly after the move had ended her career as a performer. “She used to say to me, whenever I would come to her lesson and complain, ‘Mr. Hodges, you have to accept everyone has these problems,’” he recalled. “‘It’s the people who get past these problems who have careers.’”Hodges has since performed as a soloist with orchestras including the New York Philharmonic, the Boston Symphony Orchestra and the London Philharmonic Orchestra — usually in contemporary repertoire and often with pieces written for him. He is a professor of piano at the State University of Music and Performing Arts in Stuttgart, Germany, and almost constantly premieres new work solo and in chamber music formations.“All these composers that we had idolized when we were teenagers, he has subsequently commissioned pieces from,” said Morison, who remains close with Hodges. “It’s an extraordinary thrill to witness that.”WHEN HODGES RECEIVED his diagnosis, the news came with conflicting emotions. The first, Hodges recalled, was a certain cockiness. “I’m going to be a medical miracle,” he thought to himself. “I’m going to carry on whatever happens.”When that phase passed, Hodges felt relief. He had a clear diagnosis, and the dopamine treatments prescribed by Dr. Schreiber helped. “The medication makes it possible for me to sometimes feel and play like I don’t have it,” Hodges said. “When you’re suffering from something like that and you’re untreated, you feel like you’re getting old before your time, you feel like your children have worn you out — and my poor children were blamed for that.”Hodges has had to make painful decisions while prioritizing performing commitments. Since 2012, he has played in Trio Accanto, an ensemble consisting of Hodges, the German percussionist Christian Dierstein and the Swiss saxophonist Marcus Weiss. The group has toured Europe’s major new-music festivals and recorded six albums of contemporary music together.Hodges performed Rebecca Saunders’s “to an utterance” earlier this year, and plans to play a new solo work she is writing for him.Roderick Aichinger for The New York TimesWhen Dierstein and Weiss learned of Hodges’s diagnosis, they were shaken. “We’re scared, and we are as concerned and sad as we were when we first found out,” Dierstein said in a video interview. “But it was always clear to us that we want to continue playing with Nic and that we’ll take the illness into account.”After a period of reflection during the coronavirus pandemic, Hodges decided to withdraw from Trio Accanto. He found the logistics involved in traveling to concerts and dealing with the complex instrumental setups required by many pieces too taxing. The 2024-25 season will be Hodges’s last with the group.Playing with Trio Accanto “was ideal chamber music for me,” Hodges said. But, he added, “Parkinson’s makes it necessary for my life to be simple.”Hodges has also learned to structure the doses of his medication — including a dopamine inhaler, a receptor agonist patch and extended-release pills — in a way that supports his concert roster. This often requires stark sacrifices: He essentially schedules the worst of his symptoms.In February, Hodges performed Rebecca Saunders’s “to an utterance” for piano and orchestra, a work composed for him, at the Elbphilharmonie in Hamburg. A final rehearsal the afternoon of the performance meant he had to take dopamine once at 4 p.m., and again at 8 p.m.“There might be moments when I feel like I’ve taken a bit too much,” Hodges said earlier that day, “but in the situation of playing, that’s way better than having taken too little.”In an email, Saunders said that Hodges still plays with intensity. “His recent performance of the piano concerto ‘to an utterance’ was brilliant, and I found it deeply expressive,” she wrote. She is planning to write him an ambitious new piece she described as “a big, long solo based on the concerto.”Seven other composers are currently at work on new piano concertos for Hodges. This spring, he recorded Betsy Jolas’s complete solo piano works and premiered a new piece by Christian Wolff, “Scraping Up Sand in the Bottom of the Sea.” Hodges also plans to record an album with works by Debussy and contemporary composers, similar to his double portrait of Beethoven and Birtwistle.On rare occasions, Hodges has felt he was treated differently because of his illness. One composer recently “looked straight at my hands as if they would be twisted or bleeding,” he said. But many more of his collaborators have been supportive, helping him adapt without condescension or pity.Hodges says that his goal, now, is to adjust his career “to ensure that I have the best chance to slow the progress of the disease and thus keep playing with any qualities I might have had before Parkinson’s more or less intact.”He knows that might not last forever. “If I should stop playing, then I hope that my friends tell me I should stop playing,” Hodges said. “But, at the moment, it’s working.” More

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    Making a Michael J. Fox Movie With Michael J. Fox’s Movies

    How the documentary “Still” uses footage from its subject’s films and TV shows to tell its story.When Davis Guggenheim approached Michael J. Fox three years ago in the hopes of making a film about his life, the director had a few things going for him, besides his previous success with documentaries about other luminaries including Al Gore (the Oscar-winning “An Inconvenient Truth”) and the Pakistani activist Malala Yousafzai (“He Named Me Malala”). Guggenheim’s wife, the actress Elisabeth Shue, had worked with Fox before, starring as his girlfriend in the second and third installments of the “Back to the Future” series. And Guggenheim had directed “It Might Get Loud,” a documentary about Jimmy Page, Jack White and The Edge, a fact that endeared him to Fox, a longtime electric guitar player.Even so, Fox initially balked at the idea of a movie, particularly one centered on tales he had already written about in four best-selling memoirs. “I told him, my story’s pretty self-explanatory,” Fox recalled. “I don’t know how many times you can tell it.”But Guggenheim persevered. He didn’t want to do a film version of Fox’s own memoirs, which detail the actor’s life and career and struggles with Parkinson’s, as good as he thought they were. And he didn’t want to make your standard documentary, the sort with talking heads and somber narration. Guggenheim wanted to make a movie with as much life and humor as its subject, a fun, fast-paced effort not unlike, say, a movie starring Michael J. Fox.“I wanted to take the audience on a wild ride,” Guggenheim said.In the end, Fox relented, albeit with one request: no violins. “No maudlin treatment of a guy with a terrible diagnosis,” Guggenheim said.“Still: A Michael J. Fox Movie” (streaming on Apple TV+) interweaves scripted re-enactments, archival behind-the-scenes footage, interviews with Fox, and copious clips from Fox’s four-decade-long career, including his breakthrough roles in “Back to the Future” and on “Family Ties,” which established Fox as one of Hollywood’s biggest stars.The result is a genre-defying hybrid that uses Fox’s own film and TV work to creatively illustrate key moments of his life (more on that later), and even reveal long-held secrets — for example, how Fox managed to hide his Parkinson’s for years, even while starring on the ABC comedy series “Spin City.”The film explores Fox’s career from its earliest beginnings, when the actor was 16, but playing 12, in the Canadian sitcom “Leo and Me.” In a video interview from his office in New York, Fox criticized his work in those early gigs. “I eventually figured out how to act,” he said, “but early on, I had no clue.”Davis Guggenheim, right, directing on the set of “Still: A Michael J. Fox Movie.”Apple TVInitially, Guggenheim wanted to tell Fox’s story largely through re-enactments, with actors playing Fox at various stages of his life. The film’s editor, Michael Harte (“Three Identical Strangers”), was against the idea. “The problem is, you can’t show the actor’s face,” he said. “What’s brilliant about Michael is he’s so engaging, he’s got this superstar quality.” Using a double of someone as immediately recognizable as Fox, he thought, “would push the audience out of the movie.”Instead, Harte thought they could use movie and TV clips of the actor to tell Fox’s story, which set up a “battle” (Guggenheim’s word) of creative wills between the director and the editor.One day, on a whim, Harte combined a scene from “Bright Lights, Big City,” in which Fox flips through an article he’s been assigned to fact-check, with an audio clip of Fox describing the first time he read the script for “Back to the Future.” Guggenheim loved the mash-up, and encouraged Harte to find more. It wasn’t difficult. As Guggenheim noted, there were a lot of movies and episodes to pull from.In the end, the two settled on an imaginative compromise, mixing scripted shots of Fox’s double, shot from behind so his face couldn’t be seen, and shots of the real Fox, either from the actor’s films and shows, or in behind-the-scenes clips culled from 92 VHS cassettes of “Family Ties” footage.To find all those scenes, Harte spent eight weeks watching every film and TV show Fox had ever been in. “The TV shows were the Everest,” Harte said. He painstakingly flagged every scene he thought might be useful: Michael drinks coffee. Michael walks down a hallway.It helped that Harte has been a mad Fox fan from childhood. The first movie he saw in a theater as a young boy growing up in Ireland was “Back to the Future Part II” (“a game changer”); his all-time favorite film, even now, is “Back to the Future.”Guggenheim, on the other hand, wasn’t as huge a fan of Fox or his films growing up.“I don’t think Davis had seen the ‘Back to the Future’ films before this,” Harte said, “and his wife is in them.”“I was watching different things,” Guggenheim said.The filmmakers also pored through hours of “Spin City” episodes to find footage of how Fox had kept his Parkinson’s hidden from the show’s cast, crew and audience, a fact Fox wrote about in his first memoir, “Lucky Man.” In one montage, we see Fox twiddling pens, holding phones, checking his watch, rolling up his sleeves, anything to mask the shaking in his left hand. “We were taking stuff that was scripted and using it as archive,” Guggenheim said.As Harte was sifting through the thousands of clips for material, Guggenheim set about casting actors for the re-enactments, which included stand-ins for Woody Harrelson, a longtime friend and one-time co-star; Fox’s no-nonsense but ultimately supportive dad; and, of course, Fox himself. To find someone who could match Fox’s lithe physicality, the creators had actors jump up and slide across a car hood — or try to. The one actor who could do it, Danny Irizarry, got the job. “I loved the actors that played me,” Fox said.When the first rough cut was complete, the filmmakers screened it for Fox. “It was utterly terrifying,” Harte said. “Here’s someone I grew up watching and adoring, and the first time I meet him, we’re not having a few drinks in a bar, I’m presenting what I see is 90 minutes of his life. Here’s what I think is relevant, and here’s what I think isn’t relevant, so I cut that out.”Fox was pleased with the finished project. “I think they did a beautiful job,” he said.Fox with his wife, Tracy Pollan.Apple TV+Not that moments from his life story weren’t painful to watch, particularly many moments about Tracy Pollan, Fox’s wife of 35 years, whom he first met on the set of “Family Ties.” “I married this girl who had a nascent career, doing well, and then she married me and was like this single mother,” he said. “I was off doing movies and she was home with a baby, and I made jokes about it on talk shows.” Using colorful language, Fox bemoaned the horrible thing he did to her.“And she came through for me when she could have slipped out,” he continued. “She could have said, ‘Parkinson’s, that’s not for me.’ But she didn’t, she stuck around. Getting to see that in the film was such a privilege.” More

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    ‘Still: A Michael J. Fox Movie’ Review: Hiding in Plain Sight

    The “Back to the Future” star time-travels through his career in this documentary, charting his experiences learning to live with Parkinson’s disease.With apologies to Dr. Emmett Brown, you don’t need a flux capacitor to build a time machine. All you need to do is make a film. “Still: A Michael J. Fox Movie,” a new biographical documentary from Davis Guggenheim (“An Inconvenient Truth”), zips through the “Back to the Future” actor’s career with humor and style; it gives the impression that its subject is willing to answer any question. Fox appears, head-on, in contemporary interviews with an off-camera Guggenheim. None of the charisma and charm that made him a star have diminished.But much of what distinguishes “Still” — as it’s simply titled onscreen, sans marketing hook — is how cleverly it has been edited. While this documentary draws on a standard tool kit of re-enactments and archival material, its best device is to use clips of Fox’s own movies as a counterpoint to his words, as if Fox weren’t playing fictional characters, but himself.In a way, he was. “Still” charts his experiences learning to live with Parkinson’s disease, a diagnosis he kept private for years before going public in 1998. One montage — tackily but irresistibly set to INXS’s “New Sensation” — illustrates how he managed to hide his illness in plain sight. Movies like “For Love or Money” (1993) and “Life With Mikey” (1993) reveal his practice of putting an object in his left hand to mask its trembling. What looked like nimble character work was, even then, documentary evidence.Guggenheim presents this sequence as if it were depicting an illicit drug binge, in part because Fox discusses his habit of popping Sinemet pills to keep up his level of dopamine, which is deficient in Parkinson’s patients. The segment ends by cutting to the present-day Fox, who says he needs more pills and asks Guggenheim for a couple of minutes so that the meds can kick in, to make him less “mumble-mouthed.”“Still” certainly doesn’t sugarcoat Fox’s life with Parkinson’s. An early scene shows him taking a spill across the street from Central Park. At another point, a makeup artist gives him a touch-up because a fall has broken bones in his face. But such moments are reminders of just how much any movie would necessarily leave unseen.The film establishes a brisk, appealing pace early on, as Fox, the only formal talking head (although we see him with his family), recalls how he came to acting. The title comes from one of Guggenheim’s queries: “Before Parkinson’s, what would it mean to be still?” Fox answers, “I wouldn’t know.”After moving from his native Canada to Hollywood, he says, he lived in an apartment so cramped that he washed his hair with Palmolive and his dishes with Head & Shoulders. Marty McFly emerges as an almost autobiographical creation, because the making of “Back to the Future” (1985) required Fox to engage in a bit of temporal dislocation himself. To fulfill his obligations to the sitcom “Family Ties” while making the movie, he had to shuttle between sets, with little sleep in between. In another toe-tapping montage — this time scored to Alan Silvestri’s “Back to the Future” theme — “Still” conveys the sheer whirlwind of what Fox’s life was like as drivers chauffeured him from one place to another and he could barely keep straight which role he was playing.Fox’s wife, Tracy Pollan, who appeared with him as a love interest in “Family Ties” and as a possible salvation for the cocaine-addled magazine employee he played in “Bright Lights, Big City” (1988), is held up as a rare person who could stand up to his arrogance during his peak period of stardom. “Still” becomes something of a love story, of how Pollan stayed with Fox not just through his sickness but during long gig-related absences and what he characterizes as a period of alcoholism.But the documentary is, perhaps improbably, not a downer in the least. It isn’t oriented primarily around illness, even as it shows Fox working with doctors and aides throughout. It’s a character study in which Fox reflects on his life with quick wit and self-deprecation. “If I’m here 20 years from now, I’ll either be cured or like a pickle,” he says. The real-life Marty McFly may not have a time machine. But he now has this crowd-pleaser of a movie.Still: A Michael J. Fox MovieRated R for language. Running time: 1 hour 35 minutes. Watch on Apple TV+. More

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    The Remarkable, Resilient Loren Connors

    Three decades ago, the New York guitarist was diagnosed with Parkinson’s disease. His output still hasn’t slowed.If Loren Connors was going to get to his gig, the guitarist knew he would need to crawl. It was late January 2007, two months after he had smashed into a Brooklyn sidewalk and broken his hip while carrying an armload of art, resulting in major surgery and an 11-day hospital stay.But he had agreed to rally for a concert organized by his record label two miles from his apartment, improvising with a trio he’d never met. After all, this was his life now: Diagnosed with Parkinson’s disease 16 years earlier, he expected the falls and concomitant broken bones to escalate.After a lift from a friend, there was just one unexpected hurdle on that winter night — 16 steep stairs leading to the venue, tucked inside a silo alongside the Gowanus Canal. “Loren got on his hands and knees and started crawling up,” Eric Weddle, the founder of Family Vineyard, said by phone. Weddle started his label in part to issue Connors’s music, and now he stood at the top of the stairs, dumbstruck. “His laundry list of injuries is crazy, but none of this has stopped him. It is resilience.”Connors, 72, can barely cross a room now. The pills he takes a dozen times each day often steal his speech until he can only stutter; even on good days, the syllables blur together. His legs kick at night, and he is mostly confined to the cramped Brooklyn Heights apartment he has shared with his partner, the singer and lawyer Suzanne Langille, since 1990.“Parkinson’s is a curse,” he said on his landline early one recent morning, when his speech is typically best. “It doesn’t kill you, but it just makes your life terrible. I’m hanging in there.”He is hanging in there, to some extent, because he can still play guitar and paint, both of which he does most days. In the three decades since his diagnosis, he has released about 100 records — gentle suites of forlorn melodies, relentless spans of plangent notes, and, most recently, sprawling drifts of ghostly tones.This is one of the most productive periods of his career, too, as a confederation of labels rushes to reissue his rarest albums, which often fetch hundreds of dollars online, and to distribute new recordings. During the last year, Connors has shared live collaborations with Sonic Youth’s Kim Gordon and the Australian experimental impresario Oren Ambarchi, plus a book of impressionistic flower sketches. “Airs,” a quiet 1999 collection of gorgeous and brief pieces, will be reissued Friday, with another art book and at least a half-dozen other records due in the next year.“It’s a passion and a compulsion — he has to create all the time,” Langille said by phone. “And he’s still doing it with all this weight on his back. It comes down to his determination, courage.”Connors grew up in New Haven, Conn., born to the opera singer Mary Mazzacane and the inventor Joe Mazzacane. The family of five wobbled at poverty’s edge — “shanty Irish,” Connors quipped. He developed a reputation as a rapscallion, less interested in school than drawing, the guitar and rowdy misadventures into New York.A work from Connors’s book “Wildweeds.”Loren ConnorsIn 1975, after an unhappy — if artistically inspiring — year at the University of Cincinnati, he became a janitor at Yale. For a decade, he lived rent-free in a warehouse crammed with 20 artists, the smell of paint and shellac commingling with fumes from plastic melted by a businessman making toys. (With no family history of Parkinson’s, Connors believes his exposure to these toxins ultimately led to his disease.)Connors had fallen hard for acoustic blues and electric guitarists like Jimi Hendrix and Eric Clapton, still a favorite. (“All my avant-garde friends don’t like Clapton, because he’s a pop star,” he said. “He’s more than that.”) He ran an art gallery and hosted shows by visiting musicians. In the late ’70s, he began self-releasing a series of splenetic improvisations that suggested the blues broken into bits following a violent car crash. “The reception was absolutely terrible,” Connors said by video call soon after sunrise on a September morning, Langille laughing to his right. “Everyone thought I was a real weirdo — pretty discouraging.”Actually, not everyone: Connors often cleaned the office of the Southern culture scholar William Ferris, who learned that his janitor had taken the job in part to access Yale’s voluminous library. Connors began sending him those early recordings, and Ferris offered his academic imprimatur via liner notes. “It crossed so many boundaries, redefined the blues in a very modernist way,” Ferris said in an interview. “He taught me where the roots music I loved was moving and wrote a new chapter in American music.”He found another convert in Langille, a recent Yale Law grad mesmerized the moment she saw him sit at a piano to improvise with a saxophonist in 1984. He loved the intensity of her eyes; she loved, as she put it, that “the whole composition was in him from the first note, just flooding out.” Two years later, they had their only child, Jamie. Four years after that, Connors quit his paper route, his final job apart from art. The trio moved into their 600-square-foot apartment in Brooklyn Heights in 1990 so Langille could work as a public lawyer, arguing against incinerators and advocating for wetlands.Connors in Brooklyn with his wife, the singer and lawyer Suzanne Langille.Daniel Weiss for The New York TimesFor Connors, the move fulfilled a lifelong goal he’d never been able to afford. New York became his wellspring. After Langille headed to work, Connors and Jamie would make daily pilgrimages over the Brooklyn Bridge to explore Hell’s Kitchen or Five Points. They’d spend hours at the library, researching Connors’s Irish heritage, the city’s homeless paperboys or the work of artists like Mark Rothko.“I would come home from school, and there would be paint all over the ceiling and walls from these big canvases in this tiny apartment,” Jamie said. “Or he would be recording albums in our living room, and I’d just sit there, really quietly, watching.”Connors began to meet younger experimental musicians who, much to his surprise, knew his work. His network ballooned. When Connors had been in New York for less than a decade, for instance, Thurston Moore of Sonic Youth organized a monthlong series of concerts to celebrate his 50th birthday. Four nights per week, Connors played with someone new. (His favorite? Chan Marshall, a.k.a. Cat Power.)This cadre admired his obsession with seemingly small ideas — like starting so many compositions in A minor — and recognized Connors’s fabled compulsion to make anything, always.“On 9/11, picking up a guitar was the last thing on my mind, but Loren recorded,” said Alan Licht, Connors’s most consistent collaborator for 30 years. “The city’s on fire, but he’s making music in response, like, that day. That’s how deeply ingrained it is.”It may seem cruel that Connors was diagnosed with Parkinson’s in 1991, just a year after arriving in New York, the place he’d always wanted to be. Langille and Connors both demurred at the notion. Instead, she saw how motivated he became, hoping to work as much as he could before losing control of his hands. (He hasn’t yet.) He even learned to schedule his pills so they didn’t interfere with his music. “He dived in and became incredibly productive,” she said. “Once he got into that rhythm, he never stopped.”That cycle — playing and painting every day — has created a kind of artistic map of his disease’s progression. He is improvising with the changing state of his body. Connors once bent strings wildly, as if the entire guitar quaked beneath his blues. But now, with his small-bodied Fender, he produces wide washes of subtle sound. They shift gradually, like leaves losing color in autumn. He doesn’t mind the change, even if he didn’t choose it.“People these days are always making plans — I never did that,” Connors said, chuckling softly. “When you’re a kid, you play like a kid. When you grow up, you leave kid stuff, like licks, behind.” More