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    Cola Boyy, Indie Singer and Disability Activist, Dies at 34

    Cola Boyy, whose real name was Matthew Urango, sang and produced his own brand of disco music. Born with spina bifida, he had been a vocal advocate for people with disabilities.Cola Boyy, the California singer-songwriter who collaborated with MGMT and the Avalanches and advocated for people with disabilities, has died. He was 34.Cola Boyy, who was born Matthew Urango, died Sunday at his home in Oxnard, his mother, Lisa Urango, said. No cause was given.A self-described “disabled disco innovator,” Mr. Urango assembled diverse instruments to create a brimming mixture of funky rhythm and colorful sounds that accompanied his alluring voice, a striking balance of silk and chirp.Mr. Urango was born with spina bifida, kyphosis and scoliosis and had used a prosthetic leg since he was 2.As Cola Boyy, he released a debut 2021 album, “Prosthetic Boombox,” that garnered millions of streams on Spotify and other platforms and boasted lively and introspective tunes such as “Don’t Forget Your Neighborhood,” a collaboration with the indie pop group the Avalanches.He used his burgeoning platform as an artist to speak out for social causes, including those related to people with disabilities.We are having trouble retrieving the article content.Please enable JavaScript in your browser settings.Thank you for your patience while we verify access. If you are in Reader mode please exit and log into your Times account, or subscribe for all of The Times.Thank you for your patience while we verify access.Already a subscriber? Log in.Want all of The Times? Subscribe. More

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    Livestreaming ‘Made All the Difference’ for Some Disabled Art Lovers

    When shuttered venues embraced streaming during the pandemic, the arts became more accessible. With live performance back, and streams dwindling, many feel forgotten.For Mollie Gathro, live theater was a once-a-year indulgence if the stars aligned perfectly.Gathro has degenerative disc disease and Ehlers-Danlos syndrome, resulting in joint pain, weakness and loss of mobility. Because of her disabilities, going to a show meant having to secure accessible seating after hourslong phone calls with her “nemesis,” Ticketmaster; finding a friend to drive her or arranging other transportation; and hoping her body would cooperate enough for her to actually go out.But when live performance was brought to a halt three years ago by the coronavirus pandemic, and presenters turned to streaming in an effort to keep reaching audiences, the playing field was suddenly leveled for arts lovers like Gathro.From her home in West Springfield, Mass., Gathro suddenly had access to the same offerings as everyone else, watching streams of Gore Vidal’s drama “The Best Man” and of a Guster concert at the Red Rocks Amphitheater in Colorado. For a while, it seemed, everything was online: performances by the Berlin State Opera or the Philadelphia Orchestra; dances by choreographers like Alonzo King and a New York City Ballet Spring Gala directed by Sofia Coppola; blockbuster movies that were released to streaming services at the same time they hit multiplexes; even the latest installment of Richard Nelson’s acclaimed cycle of plays about the Apple family for the Public Theater was streamed live.“I was overjoyed, but there was also this tentative feeling like waiting for the other shoe to drop because they could take the accessibility away just as easily as they gave it,” Gathro, 35, said, “which feels like is exactly what is happening.”It is happening. With live performance now back, and some theaters and concert halls still struggling to bring back audiences, presenters have cut back on their streamed offerings — leaving many people with disabilities and chronic illnesses, who have been calling for better virtual access for decades, excluded again.While many presenters have cut back on streaming, there is still more available than there used to be. In September the San Francisco Opera streamed a performance of John Adams’ “Antony and Cleopatra” starring Amina Edris. Cory Weaver/San Francisco OperaLivestreaming “opened up the door and showed us what is possible,” said Celia Hughes, the executive director of Art Spark Texas, a nonprofit that aims to make the arts more inclusive and accessible. The door, she said, has begun to close again.Aimi Hamraie,​​ an associate professor of medicine, health and society at Vanderbilt University who studies disability access, said that the decisions to cut back on streaming options “were not made with disabled people in mind.”“We’ve all been shown that we already have the tools to create more accessible exhibitions and performances, so people can no longer say it’s not possible,” Hamraie said. “We all know that that’s not true.”One in four adults in the United States has some form of disability, according to the Centers for Disease Control and Prevention. But more than three decades after the passage of the Americans with Disabilities Act made it illegal to discriminate based on disability, advocates say that it remains difficult for many disabled people to navigate arts venues: gilded old theaters often have narrow aisles, cramped rows and stairs, while sleek modern spaces can be off-the-beaten-path or feature temporary seating on risers.To be sure, there are far more streaming options available now than there used to be. The San Francisco Opera has been livestreaming all of its productions this season, and last month the Paris Opera announced new streaming options. Second Stage Theater simulcast the last two weeks of its Broadway run of “Between Riverside and Crazy” and “Circle Jerk,” a Zoom play that became a finalist for the 2021 Pulitzer Prize for drama, returned for a hybrid run last summer for both live and streaming audiences. The Cleveland Orchestra has joined the growing number of classical ensembles streaming select performances. And this year’s Sundance Film Festival was held in person in Park City, Utah — but also online.Second Stage Theater simulcast the last two weeks of its Broadway run of “Between Riverside and Crazy.” From left to right: Stephen McKinley Henderson, Victor Almanzar, Common.Sara Krulwich/The New York TimesBut venues and producers have cut back on streaming for a number of reasons: the costs associated with equipment and the work required to film performances; contracts that call for paying artists and rights holders more money for streams; and fears that streams could provide more incentive for people to stay home rather than attend in person.Arts lovers with disabilities are feeling the loss.“It made all the difference because I felt like during the pandemic, I was allowed to be part of the world again, and then I just lost it,” said Dom Evans, 42, a hard-of-hearing filmmaker with spinal muscular atrophy, among other disabilities, and a co-creator of FilmDis, a group that monitors disability representation in the media.The recent experiments with streaming have raised questions of what counts as “live.” Some events are heavily produced and edited before they are made available online.“It’s better than nothing, but it’s not the same,” Phoebe Boag, 43, a music fan with myalgic encephalomyelitis, who lives in Scotland, said in an email interview. “When you’re watching a live performance at the same time as everyone else, you have the same anticipation leading up to the event, and there’s a sense of community and inclusion, knowing that you’re watching the performance alongside however many other people.”More venues are providing programming specifically for people with disabilities and their families. Moments, at Lincoln Center for the Performing Arts, for example, is geared toward people with dementia and their caregivers. “Our main goal is that everyone has choice, everyone can get access to what they want in ways that work best for them,” Miranda Hoffner, the associate director of accessibility at Lincoln Center, said.Moments, at Lincoln Center, is geared toward people with dementia and their caregivers. Ayami Goto and Takumi Miyake, of American Ballet Theater’s Studio Company, danced.Lawrence SumulongThese types of programs have been welcomed. But others say that presenters must do more to make all of their programming accessible.“We need arts programs that are fully integrated,” Evans, the filmmaker, said.Even as presenters have cut back on streaming options, many have stopped requiring proof of vaccination and masks — placing new barriers to attendance for some of the estimated seven million American adults who have compromised immune systems that make them more likely to get severely ill from Covid-19.“It’s easy to feel just like you’re farther and farther behind and not only forgotten, but just completely disregarded,” said Han Olliver, a 26-year-old freelance artist and writer with multiple chronic illnesses who would like more access to the arts. “And that’s really lonely.”Still, new opportunities have led to more connections for and among disabled people.Theater Breaking Through Barriers, an Off Broadway company that promotes the inclusion of disabled actors onstage, has presented more than 75 short plays since 2020 that have been designed to be performed virtually. Last fall, it streamed a series of plays, including some that were created on Zoom and others that were performed in front of live audiences. Nicholas Viselli, the company’s artistic director, said the goal is to make streaming more regular.There is an idea that “‘doing virtual stuff is not really theater,’ and I don’t agree with that,” Viselli said.“It’s not the same as being in the room and feeling the energy from the audience and the actors,” he said, “but it is when you have artists creating something in front of your eyes.”Gathro continues to take advantage of streaming options when she can from her home in West Springfield. But she hopes that more presenters will stream their work in the future.“I wish I always had options for livestreaming, for really everything, because I would,” Gathro said. “For me, it’s worth paying as much as I would pay to see it in person. The accessibility is just that much more helpful.” More

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    Lauren Spencer Is a Sex-Positive Disability Influencer

    Name: Lauren SpencerAge: 35Hometown: Stockton, Calif.Now Lives: In a two-bedroom, two-bathroom apartment in Los Angeles.Claim to Fame: Ms. Spencer, who goes by Lolo, is an actress, model and disability influencer who is best known for portraying the quick-witted, sex-positive freshman Jocelyn on “The Sex Lives of College Girls,” currently in its second season on HBO Max.“Jocelyn was the college version of myself,” she said. “I was partying all the time, having sex — maybe not as often as Jocelyn is, though.” Ms. Spencer, who has muscular dystrophy and uses a wheelchair, also createsvideos debunking disability myths and shares fashion and dating tips on Instagram and YouTube. “I wanted to create content that would answer that question and eventually dispel stereotypes about how disabled people live their lives,” she said.Big Break: Ms. Spencer started her YouTube channel, Sitting Pretty Lolo, shortly after graduating from California State University, Northridge in 2012. The channel caught the attention of a Tommy Hilfiger executive who hired her for a fashion campaign. With the help of an agent, she landed the lead role in “Give Me Liberty,” a 2019 independent film about Tracy, a disability advocate, and her relationship with a medical transport driver.“I’m just going to share my truth,” Ms. Spencer said. Carlos JaramilloLatest Project: She recently voiced Jazzy on “Firebuds,” a Disney Junior animated series about a team of first responders. Jazzy, who has spina bifida, uses a combination wheelchair and car. “It’s very important for kids to start learning about disability at a young age,” Ms. Spencer said. In September, she started Live Solo, an online resource that helps young adults with disabilities live independently. “I wanted to challenge myself to figure out how I could make a greater impact on the disabled community beyond me just talking in front of a camera,” Ms. Spencer said.Next Thing: Ms. Spencer will release her first book, “Access Your Drive & Enjoy the Ride,” in February. “My goal is not to inspire anyone,” she said. “I’m just going to share my truth — a different perspective on something that’s been misrepresented for so long.” But, she added, “if people get inspiration, that’s dope.”Dating With a Disability: Ms. Spencer, who is single, said her wheelchair isn’t quite the “no big deal” apparatus it is for her character Jocelyn. “The men I have dated or interacted with haven’t necessarily freaked out or been weird about anything,” she said. “But certain things they’ve either said or done made it feel they didn’t fully accept the fact that I had a disability.” More

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    A Drummer Showing the Way to ‘the Freest Musical Universe’

    BUENOS AIRES — The crowd at a recent concert exploded into rapturous cries as the group’s frontman walked onto the stage and began setting a drum beat, launching his band on an improvised journey across musical genres that culminated an hour later in a standing ovation.Over a 30-year career, Miguel Tomasín has released more than 100 albums, helped turn his Argentine band into one of South America’s most influential underground acts, and helped hundreds of people with disabilities express their voices through music.Mr. Tomasín has achieved this in part because of a distinctive artistic vision that comes, his family, fellow musicians and friends said, from having been born with Down syndrome. His story, they say, shows how art can help someone overcome social barriers, and what can happen with an effort to elevate a person’s talents, rather than focusing on their limitations.“We make music so that people enjoy it,” Mr. Tomasín said in an interview at his home in the windswept Argentine city of Rio Gallegos, near the country’s southern tip. Music is “the best, magical,” he added.Though his prolific output has not achieved commercial success, it has had a significant impact on how people with disabilities are perceived in Argentina and beyond.At a recent sold-out Reynols concert in Buenos Aires, Miguel Tomasín sang and played all the instruments on the stage in front of 600 fans.Video by Centro Cultural KirchnerIt has also inspired members of his band, Reynols, to establish long-running music workshops for people with disabilities. And other musicians they have worked with have started more bands whose members include those with developmental disabilities.“Thanks to Miguel, many people who had never interacted with a person with Down syndrome were able to become aware of their world through music,” said Patricio Conlazo, an occasional Reynols member who, after playing with Mr. Tomasín, started music projects for people with disabilities in southern Argentina.Reynols’s unconventional approach to music has also inspired established musicians.“I was reminded by him that you can play music as you like,” said Mitsuru Tabata, a veteran Japanese experimental musician who has recorded with Reynols.But the band’s freewheeling sound has its detractors, too.A prominent British music journalist, Ben Watson, called their music “annoying racket,” in his 2010 book “Honesty Is Explosive!” where he suggested that Mr. Tomasín’s presence in the band was a publicity stunt.The members of Reynols, from left; Alan Courtis, Patricio Conlazo, Mr. Tomasín and Roberto Conlazo in their dressing room before a concert in Buenos Aires.Mr. Tomasín playing the drums during the concert in Buenos Aires.In its first years, the band struggled to find venues and labels interested in their improvisational sound. A turning point came nearly a quarter century ago, in 1998, when they unexpectedly became a house band on an Argentine public television program, which exposed them to a new audience.The job made Mr. Tomasín the first Argentine with Down syndrome to be employed by a national broadcaster.“It was revolutionary, because people with these conditions were largely hidden from public view,” said Claudio Canali, who helped produce the program.A New York Times reporter and a photographer spent a week in Argentina to interview Mr. Tomasín and document his life, both in Buenos Aires and Rio Gallegos. Mr. Tomasín speaks in short phrases that are largely understandable to a Spanish speaker, but sometimes require an accompanying relative to put them in context.Mr. Tomasín is 58, though, like many other artists he lowers his age, insisting he is 54.He was born in Buenos Aires, the second of three children of middle-class parents. His father was a Navy captain, his mother a fine arts graduate who stayed home to raise the children.In the 1960s, most Argentine families sent children with Down syndrome to special boarding schools, which in practice were little more than asylums, according to his younger sister, Jorgelina Tomasín.After visiting several of them, his parents decided to raise Mr. Tomasín at home, where he was treated no differently than his siblings.Mr. Tomasín posing with a fan after the show in Buenos Aires.Mr. Tomasín improvising on the piano while wearing his favorite Reynols T-shirt.He started showing interest in sounds as a toddler, banging on kitchen pots and playing with a family piano, prompting his grandparents to buy him a toy drum kit.Later, after coming home from school, Mr. Tomasín would go straight to his room and play all three cassettes that he owned from beginning to end, making the crooners Julio Iglesias and Palito Ortega an inescapable house presence for years, Ms. Tomasín said.By the early 1990s, the close-knit household began to separate, as his siblings grew up and left home, leaving Mr. Tomasín, by then a young adult, feeling isolated.To fill the void, his parents decided to send him to a music school, but struggled to find one that would accept him.One day, in 1993, they tried an unassuming place they came across while shopping in their Buenos Aires neighborhood, the School for the Comprehensive Formation of Musicians, which was run by young avant-garde rockers who taught classes to subsidize their rehearsal space.“‘Hi, I’m Miguel, a great famous drummer,’” Roberto Conlazo, who ran the school with his brother Patricio, recalled Mr. Tomasín saying at their introduction, despite his having never, up to that point, touched a professional drum kit.Mr. Tomasín checking his drums.From left, Patricio Conlazo Mr. Tomasín and Roberto Conlazo during a rehearsal.The school became an unexpected artistic home for Mr. Tomasín. In a country that remains deeply divided by the legacy of a military dictatorship and a Marxist insurgency, it was rare for a military family to even associate with bohemian artists, let alone entrust a child with them.But Mr. Tomasín’s family and the artists ended up becoming lifelong friends, an early example of how his lack of social prejudices has influenced others to reconsider long-held assumptions. His spontaneity and lack of insecurities made Mr. Tomasín a natural improviser, and an ideal fit for the school’s goal to create music without preconceived ideas.“We were looking for the freest musical universe possible,” said Alan Courtis, who taught at the school. “Miguel became the alarm that woke up the dormant side of our brains.”Roberto Conlazo and Mr. Courtis had already been playing in a group that eventually would become Reynols, a name loosely inspired by Burt Reynolds.After giving Mr. Tomasín some drumming lessons, they decided to bring him into the band. Their collaboration, however, got off to an uncertain start.Mr. Tomasín in the dining room at his brother’s home in Rio Gallegos, Argentina.Mr. Tomasín with his brother, Juan Mario Tomasín, and a neighborhood dog on the banks of the Rio Gallegos River.During one of their first shows, in 1994, a crowd of high school students broke into a mosh pit, which Mr. Courtis and Roberto Conlazo stoked by spraying deodorant into the audience’s faces, pulling out guitar strings with pincers and emitting bloodcurdling noise from primitive loudspeakers.When Mr. Tomasín’s father, Jorge Tomasín, approached the band after the show, they were resigned to never seeing Miguel again, sure his father would disapprove.“‘Lads, I didn’t understand a lot of what you played,” Roberto Conlazo recalled the father saying, “‘but I saw Miguel very happy. So go right ahead.’”Those words were a green light for the ensuing three decades of creativity that has produced around 120 albums, American and European tours, and collaborations with some of the world’s most respected experimental musicians. Reynols splits proceeds from shows and music sales equally, making Mr. Tomasín one of the few professional musicians with Down syndrome in the world.The band first came to broad national attention with the afternoon TV gig. A popular host, Dr. Mario Socolinsky, had interviewed Reynols on his daytime program, “Good Afternoon Health,” in which he gave health tips. Impressed with Mr. Tomasín’s integration into the band, he invited them to be the show’s house musicians, giving Reynols an unlikely job of playing to a mainstream audience five times a week for a year.Reynols’s next break came in 2001, when Mr. Courtis and Roberto Conlazo went on the band’s first U.S. tour. Although Mr. Tomasín decided not to join them, the tour introduced his work to the global underground music network that has supported the band’s subsequent career.Mr. Tomasín playing guitar during a concert.Juan Mario Tomasín, left, Miguel’s brother, and his bandmate Patricio Conlazo after a rehearsal.In the following years, the band’s focus on improvisation drove its extraordinary output of albums. Because each jam session with Mr. Tomasín could result in a different sound, the band has released dozens of them as albums on small record labels in runs of a few hundred copies.After seeing Mr. Tomasín’s performance on TV, families across Argentina started contacting the band, asking them to teach music to their children with disabilities. That led Mr. Courtis and Roberto and Patricio Conlazo to create a collective, called Sol Mayor, which brought together people with various physical and developmental disabilities to play music.Their approach, they believe, puts a spotlight on the beauty of music that does not follow Western norms, like playing in an octave scale.Inspired by work with Reynols, other musicians have started bands for people with disabilities in Norway and France.“We make music so that people enjoy it,” Mr. Tomasín said. Music is “the best, magical,” he added.Mr. Tomasín in his bedroom at his brother’s family home in Rio Gallegos.Mr. Tomasín’s family say they were able to give him the support to develop his creativity thanks in part to their relatively well-off economic position, acknowledging the social inequalities that prevent many people with disabilities from reaching their potential.At a recent sold-out Reynols concert in Buenos Aires, Mr. Tomasín sang and played all the instruments on the stage in front of 600 fans, posing for selfies with admirers after the show.Earlier this year, Mr. Tomasín moved from Buenos Aires to Rio Gallegos to live with his brother Juan Mario, a former Army officer who now teaches English. In the afternoons, Mr. Tomasín dances to Argentine folk music, cooks and gardens at a local center for people with disabilities, often wearing his favorite Reynols T-shirt.Mr. Tomasín’s bandmates say one of his greatest gifts is helping people become better versions of themselves without even being aware of his influence.“He teaches without teaching, by simply enjoying his life,” Roberto Conlazo said.Mr. Tomasín’s big plan for the near future is to stage a concert in his new town, bringing his bandmates from Buenos Aires, 1,600 miles away, and inviting his new friends.“Let them come to my school,” he said, “so we can all play together.”Mr. Tomasín participating in a folk dance class at the René Vargas Day Center in Rio Gallegos.Hisako Ueno More

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    Martyna Majok on Hoping for Magic, and Wishing for Ghosts

    The playwright, whose Pulitzer-winning “Cost of Living” is now on Broadway, talks about “the precarity of life” and our inherent need to be taken care of.The playwright Martyna Majok has never met her father, so it was her grandfather who played the paternal role in her life. When he died, in Poland in August 2012, she didn’t have the money to travel to his funeral.“Also, I was afraid to go,” she said on a recent afternoon, “because I just didn’t want it to be true.” Not being there, though, gave his death a sense of unreality for her: “Sometimes I just think that we haven’t spoken for a long time.”Majok (pronounced MY-oak) was missing him on the snowy January night in 2014 when she lost her job at a bar in downtown Manhattan. (“They thought I had stolen $100, and they fired me because I was mouthy.”) Back home at the latest in a string of sublets, she started to write the poignant comic monologue that opens her Pulitzer Prize-winning play, “Cost of Living.” It’s spoken by a hapless former trucker named Eddie, whose unmooring grief for his dead wife has him wanting to believe she’s texting him from the Great Beyond.“He’s hoping for some kind of magic, some miracle, something that communicates to him that we don’t just disappear,” Majok said in an upstairs lounge at the Samuel J. Friedman Theater, where “Cost of Living” — which she dedicated to her grandfather, Pawel Majok — is having a limited Broadway run through Nov. 6. “That was definitely where I was at when I was writing it. I kept hoping that I would see my grandfather’s ghost. I was seeking it out. I was looking for signs.”Katy Sullivan and David Zayas in the Broadway production of “Cost of Living.” Majok insists that her disabled characters be played by disabled actors, a decision that Sullivan calls “bold as hell.”Sara Krulwich/The New York TimesAs tinged with longing as “Cost of Living” is, it’s also laugh-out-loud funny. Yet Majok considers it a romance, twining the stories of two New Jersey couples: Eddie and his estranged wife, Ani, who is adjusting to paraplegia following an accident; and Jess, a working-class graduate of a prestigious university who takes a job as a personal care aide to John, a wealthy doctoral student with cerebral palsy.Class figures prominently, as does disability. But to Majok it is a play about “the precarity of life” — the way that one bad break, financial or physical or emotional, can tumble a person into desperation — and the need we all have to be taken care of.Majok, who once juggled late-night bartending jobs with work as a personal care aide to two disabled men, insists that her disabled characters must be played by disabled actors. That stipulation, she said, has gained “Cost of Living” a reputation for being difficult to produce, and led some rights seekers to ask her to make an exception. Short answer: No.“Which I think is brave and bold as hell,” said the actor Katy Sullivan, an amputee who has played Ani in five productions — the world premiere at Williamstown Theater Festival in 2016, Off Broadway in 2017, Los Angeles in 2018, London in 2019 and now Broadway. “I am certain that she has lost out on income because she has drawn that line in the sand.”Majok is just as fierce in her dramaturgy, unafraid of lulling “Cost of Living” audiences into a pleasurable sense of comfort only to spring on them a plot twist that makes the whole room gasp, uncertain whether the emergency onstage is real or part of the play. During the Off Broadway run at Manhattan Theater Club, she recalled, a woman got out of her seat at that moment in the performance and started moving toward the stage to help.“I found that so beautiful,” Majok said, “because to me it was like, look at how instantly we care for people.”This is the tender-tough yin and yang of Majok, who pivots to humor if she tears up, as she did in speaking about her grandfather, the same way her characters joke if they go anywhere near self-pity.Lesson in betrayal: Sharlene Cruz, left, and Jasai Chase-Owens in last year’s New York Theater Workshop production of Majok’s “Sanctuary City,” at the Lucille Lortel Theater.Sara Krulwich/The New York TimesJo Bonney, the director of the Williamstown, Off Broadway and Broadway productions of “Cost of Living,” said that Majok as a playwright “is never sentimental, even when people are in dire circumstances. She has faith, I think, in human resiliency. And that’s just very powerful.”Majok, whose other plays include “Sanctuary City” (2021), about a pair of undocumented teenagers, and “Queens” (2018), set among immigrant women sharing a basement apartment, was 5 when she came to the United States from Poland. She grew up mainly in New Jersey, where her mother cleaned houses and still sometimes does on the side.“I have offered to pay her to not clean,” Majok said. “‘I will give you $75 to not clean this house.’ And she’s like, ‘Why don’t you just give me $75 and I’ll still clean the house?’ I’m like, ‘No!’ Scarcity mind-set, scarcity mind-set.”In her childhood, there was some back and forth to Poland before she and her mother became firmly rooted here. Majok feels self-imposed guilt about having chosen as an adult to remain in this country, where her mother and younger sister are, rather than return to Poland, where their extended family is.That’s one reason the markers of success that she’s accumulated — among them an undergraduate degree in 2007 from the University of Chicago, an M.F.A. in 2012 from the Yale School of Drama, the Pulitzer in 2018, the Broadway debut this month — matter to her, as validation of her writing and her life.“I feel like I’m apologizing for leaving Poland,” she said in a second interview, which she’d requested in part to elucidate this. “If you leave your family, it better be [expletive] worth it.”What’s next for the playwright? She’s in the process of adapting a couple of books into films, and collaborating on a musical adaptation of “The Great Gatsby.” Dina Litovsky for The New York TimesScrupulous in her thinking, meticulous in her writing, Majok is easy with profanity. That day, sitting on a bench overlooking the Heather Garden in Fort Tryon Park, near her apartment in Upper Manhattan, she wore a gold necklace that she’d taken off before the photo shoot for this article, figuring it would never make it into a published picture.From a distance its lowercase cursive looks like maybe it’s spelling out a name. On closer inspection, though, it’s one brief expletive, three times in a row — a gift from Marin Ireland, who starred in the 2016 New York premiere of “Ironbound,” Majok’s breakthrough play about a Polish immigrant much like her mother, in which variations on that word appear 68 times.In the “Cost of Living” script, the number is 77, counting an author’s note explaining that in “the Jersey mouth” — and Majok does, after all, have a Jersey mouth — the expletive in question “is often used as a comma, or as a vocalized pause, akin to the word ‘like.’”Despite lingering worries about what she calls “the [expletive] hubris” of presuming she has the luxury to turn down work, Majok lets herself be picky these days about the projects she takes on. She has said yes to adapting a couple of books into films that she’s not yet allowed to discuss, but no to assorted screen projects about “lady murders.” On her wish list? Making a film of “Cost of Living.”And while she was never a collaborator on the musical adaptation of that play, which was announced in 2018, she is collaborating on a musical adaptation of “The Great Gatsby” — which sounds like an odd fit until she says that she sees Jay Gatsby as a working-class character.It’s a psychology that she understands.Far more stable than when she started out, Majok still has a vigilance within — a part of her that is forever anticipating the kind of fracture that could break her life.“I feel like I’m more prepared for catastrophe,” she said. “But you never [expletive] know.” More

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    ‘I Didn’t See You There’ Review: A View From His Seat

    The filmmaker Reid Davenport, by turns pensive and irritated, takes viewers inside his life as a disabled person through footage shot entirely from his perspective.In the personal essay film “I Didn’t See You There” the filmmaker, Reid Davenport, makes an extended attempt to fully embody his point of view with the help of kinetic camerawork. As an artist with a disability, Davenport navigates the world in a wheelchair, with verve and little patience for the obstacles others can pose, both physical and ideological.His trips around Oakland, Calif., and across the country to visit his caring family in Connecticut lead him to reflect on “being looked at and not seen,” as he puts it, as well as on the labor of just going about his business in a world that doesn’t always have his needs in mind. His occasional meditations in voice-over are punctuated by pointed encounters with strangers, from flight attendants to an impressed neighbor, and an energizing percussive soundtrack.Davenport also dwells on dazzling views of the patterned surfaces — such as colorful pavements and walls — that he rolls past. These suggest a heightened attention to potential hazards, but they also evoke the joyous run-on reels of avant-garde diarists like the filmmaker Jonas Mekas.Davenport’s circumstances are different, of course. His mobility is often dependent on others, and he keeps the camera off himself, in contrast with the many dramas that turn people with disabilities into passive subjects. When he encounters a circus big top that has been erected in his neighborhood, he laments its galling presence and its associated history of freak shows.With his feature, Davenport stakes out his own vantage point on the world, one that leaves a viewer wishing to hear his thoughts elaborated even further.I Didn’t See You ThereNot rated. Running time: 1 hour 16 minutes. In theaters. More

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    Beyoncé Will Change ‘Heated’ Lyrics After ‘Ableist Slur’ Criticism

    The pop star’s decision to replace two words in her song “Heated” follows Lizzo’s removal of the same term, which has been used as a slur against disabled people, from her track “Grrrls.”Days after the release of her latest album, “Renaissance,” Beyoncé will modify the lyrics of one of its songs, a representative for the singer said on Monday, in response to an outcry from disability rights advocates who say the pop star should not have used a word that has historically been employed as a derogatory slur.In “Heated,” a dancehall-inspired track, the singer uses the words “spaz” and “spazzin’” in an energetically recited portion of the song that’s a callback to the freestyles at some ballroom events. Activists condemned the use of the word in social media posts, pointing out that another pop star, Lizzo, had removed the same lyric from a song following similar backlash in June.“The word, not used intentionally in a harmful way, will be replaced,” a spokeswoman for Beyoncé said in an email.The word at issue is based on spastic diplegia, a form of cerebral palsy that causes motor impairments in the legs or arms. In June, Hannah Diviney, a writer and disability advocate from Australia, tweeted about Lizzo’s use of the word, noting that to a person with cerebral palsy like her, spasticity referred to an “unending painful tightness” in her legs, and urged the singer to “do better.” In response to the criticism from fans and activists, Lizzo changed her song, “Grrrls,” and wrote in a statement that “this is the result of me listening and taking action.”Diviney wrote in an op-ed, published in The Guardian on Monday, that her “heart sank” when she learned that Beyoncé’s new album had used the same word.“I thought we’d changed the music industry and started a global conversation about why ableist language — intentional or not — has no place in music,” Diviney wrote. “But I guess I was wrong, because now Beyoncé has gone and done exactly the same thing.”Disability right advocates have noted that the word has been more commonly used as a derogatory term in the United Kingdom compared to the United States. Scope, a group in Britain that campaigns for equality for people with disabilities, tweeted, “Disabled people’s experiences are not fodder for song lyrics,” and urged Beyoncé to follow Lizzo’s example. More